At the care team meeting yesterday, it was documented that Ray has officially emerged from the PTA phase. This is great news for us and huge to his recovery. With the announcement of this change at the meeting, it was agreed amongst the team that Ray should remain in Tampa for another month so that he can participate in more aggressive therapies prior to discharge. Now that he is more aware, he will be able to take more advantage of the therapies provided. While no exact details on these additional therapies are known at this point, we are anticipating Ray will be released to come home toward the end of January. There will be another family meeting scheduled next month to go over the details of the care plan at greater length and from that we will have a better understanding of what to expect.
In addition to the PTA emergence, Ray has been able to tolerate ‘soft’ foods and no longer requires a pureed diet. Liquids must remain honey-thick but it is likely that he will be able to consume thinner liquids soon. Reducing the risk of silent aspiration caused by not swallowing food and liquids correctly will be an item of main focus for the care team over the next month. If all goes well, Ray will be back to regular foods and liquids soon and not have any need for his feeding tube any longer. No other significant changes have been observed.
Since our last family meeting we have been gearing up for Ray to come home before Christmas. This was both exciting and a bit scary for us at the same time. Now that he has come out of PTA, things should be easier for his care and his true recovery can now begin. While it is a bummer that he will not be home for the holiday, we will make the best of the situation and be with him in Tampa instead. Through the process of supporting Ray these past six months we have learned to be flexible and accept things as they come. The change of plans will be for the better and we all need to show Ray our love and support on this journey. Please continue to keep Ray in your thoughts and prayers over the holiday season.