Contact with Ray

All –

As we make contact with Ray we need to be aware of the full extent of his injuries. Reuniting him with his past life needs to be handled with extreme care. Expecting the same personality and behavior from him now as before the accident only complicates matters and regresses his progress in therapies. The family wishes to ask for everyone’s support on this and to use sound judgement when attempting to involve Ray in activities or promote a return to his old life. It is better to offer him the encouragement to continue with his therapies than a full return to his former self.

At this time Ray must remain in controlled community outings due to behavior problems. His care team has been attempting to better this issue but it has been on ongoing struggle. At this time Ray is required to remain on close supervision both inside and outside of NeuroRestorative and all high stimulation outings need to be approved by his care team. This includes the graduation ceremony and related activities. Although Ray may want to attend these activities and express interest, we must exercise prudent judgement to prevent further regression. Progress in therapies far surpasses anything else at this point and we all need to help Ray work toward his eventual recovery. Please spread the word on this and help out where possible.

Thank you,

Team Ray

Keeping On

Progress remains slow and steady since the last update.  Ray has continued further through his rehabilitation plan with promising outcome.  The major focus areas that are currently being addressed from the MPAI include:  mobility, initiation, self-care, attention / concentration, problem solving, self-awareness, visuospatial abilities, and social interaction.  Within these areas several goals are developed to help improve Ray’s ability.  He has already accomplished many goals in all areas with many more that are in progress or being adapted to better suit his needs.  His attendance in all scheduled therapy sessions has been good and Ray seems to be doing better with keeping a good attitude when engaged in specific tasks.  His social interaction has also improved somewhat, however, impulse control remains an issue with anger outbursts still present.

On the medical front things are looking good.  A diet change was recently approved to allow Ray regular thin liquids while using caution to avoid aspiration.  Kepra and Primidone remain his primary tremor medicines with Kepra to eventually wean away in the near future and Primidone to stay at some level.  A consult through the VA for Deep Brain Stimulation is to occur next month to look into this as another option to treat the tremor issue.  This would most likely be a last effort approach if both Ray and the doctors feel this could be something to help him.  Since taking the Primidone his tremors have gotten better and dosing changes may further remedy the problem over time.  Mobility has also improved greatly with Ray now able to move around with a walker.  Long outings still require the use of a wheelchair.  Most basic ADLs can also be accomplished without much assistance, while others still require prompts and staff cooperation.  Self-care has been a major goal from the beginning and continues to be an arduous task for Ray on account of his tremors.

Physically Ray has made great improvements in these past few months.  Mentally is a whole other challenge area that serves as a major source of contention.  Being stubborn by nature, Ray remains on his perception of only needing time and medicine in order to recover to a more functional state.  Impaired awareness will most likely remain as a major stumbling block for a while to come.  At times Ray will admit his limitations but only when dealing with physical tasks.  He has yet to fully acknowledge any of his cognitive impairments.  This is not to say that he may be completely unaware of the problem, but rather is not openly admitting it and working to his fullest to better the situation.  It is often difficult to determine at what level Ray is mentally functioning at any given time.  His attitude and ability vary greatly throughout the day making it nearly impossible to determine his demeanor before contact.  While this remains a huge problem area, it has not stopped progress from advancing.

Encouragement to keep with the program is still needed.  Unfortunately Ray isn’t able to correspond back to you at this time, but he does seem to enjoy all the fan mail and phone calls.  Keep in mind when calling or visiting with him that he still lacks proper filters for controlling his impulses and he may say or do things that are inappropriate for the situation.  This is a frontal lobe impairment that will remain a constant obstacle for him.  Please keep up the support and stay tuned for more updates to come.  New posts may be a little more sporadic as progress remains slow.

(Weekend visit with Ray):

Ray with his brother

Ray with his brother, and nephew & niece

Uncle Ray enjoying his nephew’s company

Thank you,

Team Ray