Hopeful Year Ahead

Ray has been adjusting well at home since his transfer from the NeuroRestorative program earlier this year.  Recovery remains slow and steady with the likelihood of more recovery highly possible.  The length of time for recovery has been difficult for Ray to accept but he is now able to fully embrace his situation with a new optimistic mindset.  This acceptance has resulted in a positive outlook on life ahead.

Contributing to the upbeat attitude has been Ray’s involvement with a movement disorder specialist.  Earlier this month he was able to attend an initial appointment with the specialist through the VA in Gainesville.  From the appointment Ray was prescribed a new tremor medicine, Topiramate, which has already begun to help him slightly with the tremors.  This new medicine is being taken concurrently with his other tremor medicines during this initial evaluation.  A follow-up with the VA on this is expected mid-February.

Keeping Ray busy has also been a great way to engage him and keep him from depression.  On his own ambition he has applied to become a volunteer at Flagler hospital with plans to also volunteer at the local YMCA.  Ray has an interview early next month with Flagler to discuss his application.  Please send him good luck for these volunteer opportunities.  This would be a great way for Ray to help the community and himself in the process.

As Ray continues in his outreach with the community you may start to hear more from him.  He does have a laptop and iPad but requires assistance with using them.  The VA may still be able to provide assistance to him on being able operate these devices with less involvement through specialized hardware/software.  Now that Ray is more accepting of his limitations there should be additional appointments with specialists for help.

Looking back on this year there has been a vast improvement in Ray’s demeanor.  Anger and impulsivity were constant issues that now seem to have gone away almost entirely.  Ray is more physically fit and able to perform far more ADLs than before such as shaving, laundry and vacuuming.  Attending social events and visiting with friends without incident has also been a highlight from this year in review.  As we look back on all the great things from this past year it gives us a renewed hope for what lies ahead.

Park outing after Christmas.

Park outing after Christmas.

Please continue to reach out and contact Ray.  He appreciates your support!

Thank you,

Team Ray


5 thoughts on “Hopeful Year Ahead

  1. Still praying for all the good things to come your way! Your friends in Gainesville miss you! All the best!

  2. As an update on Ray’s community outreach, he was denied a volunteer position at Flagler due to nothing being available that meets his current skill set. We still have a few other options for him to pursue that may lead to a part-time volunteer opportunity. Ray remains upbeat and determined toward helping the community. Wish him luck and please keep on with your support.

    Thank you!

  3. Excellent news!!! Ray, I really hope you will be able to enjoy reading soon. I am so proud of you for volunteering to help others. You know, just because your original plans for how you were going to help others aren’t working out, that doesn’t mean you won’t have a positive impact on people. From what I’ve heard about you, you have a really good heart, and there are ways you can share that with people that don’t require being a doctor. So please give that some thought, and as Tony Robbins has said, do the best you can with the resources you have. I have faith in you.
    All best,
    Carole Rains

    • Ray is getting better with reading but it is still a challenge for him. With more practice and his tremors continuing to get better it should become easier. He keeps trying to better himself how he can. His heart is in the right place and in time he will be able to do more to have a greater positive impact. Thanks for your continued support and kind words. Ray appreciates it!

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